CERTAINTY Sheds Light on Parkinson’s Disease And Its Impact On Activities Of Daily Living

KUALA LUMPUR, MALAYSIA – Media OutReach – 28 April 2021 – As we age, the possibility of Parkinson’s Disease becomes real. It is
common that people affected by this disease are not aware of its impact and how
to manage its symptoms effectively and confidently. In conjunction with World
Parkinson’s Day this April, CERTAINTY would like us to take some time to
understand how this neurological disease can significantly impact the lives of
the people it affects, especially when it comes to Activities of Daily Living
(ADL).

Today, there are more than 20,000 Malaysians diagnosed with
Parkinson’s disease and this number
is only expected to rise as we move towards becoming an ageing nation.

 

Due to this decrease in dopamine, a Parkinson’s patient’s movements
are affected, resulting in common symptoms like tremors or trembling in the
hands, arms, legs, jaw or head; stiffness or rigidity in the limbs and body;
unusually slow movement; and impaired balance and coordination.

 

Those affected find it difficult to start or stop moving, and control
fine movements like gripping a pen and writing, as well as being prone to
falling, making it challenging for them to carry out ADL. Their facial
expressions can also become stiff, affecting their ability to communicate
non-verbally. All these symptoms initially manifest subtly, e.g. the person
might find it just a bit more difficult to get out of a chair or their bed, but
will eventually progress if left untreated.

 

In addition, those living with Parkinson’s disease might
experience symptoms like difficulty in chewing, swallowing and speaking; mood
changes like depression and apathy; sleep problems; skin problems; cognitive
issues; constipation; and urinary problems like incontinence.

 

All of these symptoms can have a profound impact on the patient’s
quality of life.

 

Managing
Parkinson’s

 

Although the cause of Parkinson’s disease is still unknown and there
is no cure for the condition, there are a number of treatments that can help
patients control their symptoms for a better quality of life. These include
medication, surgery and supportive therapy^[1].

 

There are a variety of medicines available to treat Parkinson’s
disease. Some are used during the early stages of the disease, while some are
prescribed for the more advanced stages. The drugs can be quite effective in
controlling the symptoms of the disease, but will eventually lose their effect
over time.

 

The surgical option available for advanced Parkinson’s patients who do
not respond well, or have stopped responding, to medication is deep brain
stimulation. This is where electrodes are placed in certain parts of the brain
and linked to a neurostimulator (also known as a brain pacemaker) in the chest,
which generates electrical impulses to help control the symptoms of the
disease.

 

Supportive therapies like physiotherapy, occupational therapy and
speech therapy, plus lifestyle modifications like exercise and dietary changes,
can also help to ease the symptoms of this condition.

 

Physiotherapy can help a Parkinson’s patient maintain their
independence by providing them with techniques to deal with movement issues,
e.g. when getting in and out of bed, a chair or a car, as well as strength and
balance training to help with movement difficulties and preventing falls. A
physiotherapist will also be able to tailor an exercise and fitness programme
for the patient.^[2]

 

Meanwhile, occupational therapy provides practical advice and methods
for patients to carry out their ADL, while coping with symptoms like tremors,
anxiety, fatigue and difficulty in communicating. Among the ways an
occupational therapist can help those with Parkinson’s are demonstrating
different methods of accomplishing daily tasks, like buttoning up a shirt or
putting on make-up; recommending practical changes to the house or furniture
arrangement to take into account their symptoms; and helping the patient
develop strategies to cope with ADL that might become more difficult as their
disease progresses in the future.^[3]

 

For patients in the early stages of Parkinson’s, a speech therapist
will help them maintain their ability to communicate for as long as possible.
In the more advanced stages of the disease, the therapist will be able to
suggest techniques and tools to help ease communication. In addition, speech
therapy also helps the patient with eating problems like difficulty chewing and
swallowing, or drooling. This form of therapy also provides tips to caregivers
and family members of the patient on how best to communicate with the patient,
as well as warning signs of when the patient may be experiencing eating
difficulties.^[4]

While exercise is an important part of a healthy lifestyle, it is of
particular importance to those with Parkinson’s disease, as it helps them
maintain their balance, mobility and ability to perform ADL.^[5]
The earlier a Parkinson’s patient starts a regular exercise routine, the longer
they will be able to maintain a better quality of life and delay progression of
their symptoms. While there is no one “right” workout regime for Parkinson’s
patients, each person should ensure that they cover the fitness elements of
strength training, aerobic activity, flexibility, agility and balance for the
best results. Tai chi and yoga in particular have been shown to help with
balance, flexibility and mobility in patients with Parkinson’s.^[6]

 

When it comes to diet, there is no one food or combination of foods
that have been proven to help with Parkinson’s disease. However, simple
modifications to what a patient eats can help to alleviate some of the symptoms
they are experiencing. For example, constipation can be ameliorated by
increasing the amount of fibre in one’s diet and by drinking lots of water,
while low blood pressure and its accompanying symptoms like dizziness upon
standing up, can be managed by increasing the amount of salt in one’s diet and
eating small, regular meals. For patients with difficulty eating, their foods
might have to be softer in texture, while also nutrient-rich to ensure that
they are getting sufficient nutrition.

 

There are also various aids available that can help to make life a
little easier for Parkinson’s patients. For example, walking sticks, walking
frames, grab rails and handrails can help with moving around outside or inside
the house, including while using the toilet or shower. Satin or silk sheets or
pyjamas can help patients slide onto and out of bed more easily. There are also
all kinds of modified eating and kitchen utensils, like spoons, forks, cups,
plates, bowls and non-slip table mats, that can help make eating easier for a
Parkinson’s patient. Other simple modifications include putting rubber bands
around items to provide a better grip and using magnets or Velcro instead of
buttons on clothes.

 

Urinary
incontinence

 

One other symptom of Parkinson’s disease that can have a major impact
on quality of life is urinary incontinence, where the patient is unable to
fully control the passing out of their urine. This is due to the disruption in
communication between the brain and the bladder due to low dopamine levels.

 

The types of urinary incontinence Parkinson’s patients might
experience are urge incontinence and nocturia.^[7] Urge
incontinence occurs when a person gets that urgent need to urinate, but is
unable to control themselves from urinating before they get to the toilet.
Meanwhile, nocturia is the abnormally frequent need to get up and pass urine
during the night while you are asleep.

 

As can be imagined, urinary incontinence can have a negative impact on
a person’s mental and social health. It is not unusual for such persons to
experience feelings of shame, embarrassment, social isolation, loneliness and
loss of control, as well as body image issues. The lack of ability to control
their urination will cause them to limit their social activities outside the
house for fear of wetting themselves unintentionally, resulting in social
isolation and loneliness. They also tend to reduce or stop working out as
high-impact exercises can lead to involuntary leakage of urine. These issues
are further compounded when the person is also struggling with other symptoms
of Parkinson’s disease, and can lead to mental health issues like depression
and anxiety. 

 

Urinary incontinence can also be difficult to deal with for
caregivers. The financial burden of continence care, the relationship changes
that happen and the social isolation enforced upon them can affect the
caregiver negatively.^[8]

 

Fortunately, urinary incontinence is a manageable condition.

 

For a start, the patient can “train” their bladder by establishing a
regular routine of going to the toilet, e.g. after every meal. They should
avoid drinking any beverages starting two hours before bedtime, as well as
minimise their intake of caffeine, gassy drinks and alcohol as these can
stimulate urine production. Wearing clothes that have less buttons or zips, and
can be easily removed quickly, can also help Parkinson’s patients who struggle
with both difficulty in movement and urinary incontinence.

 

In addition, there are various products available for those with
urinary incontinence to help manage their condition. These include bed pads,
mattress protectors, male incontinence sheaths, and incontinence pads and
pants.

 

Products like CERTAINTY’s
adult diapers, in particular, are specially designed based on the level of
mobility and level of urinary incontinence a person has, which is especially
relevant for those with both Parkinson’s disease and urinary incontinence.

 

Based on their ADL care concept, which has six levels (ADL 0-5),
CERTAINTY helps users to choose the right type of adult diaper based on their
level of mobility. Currently, there are four different types of CERTAINTY adult
diapers. The CERTAINTY DryPants and CERTAINTY SuperPants cater to those who can
walk or move around independently or with minimal walking aids respectively.
Meanwhile, the CERTAINTY MaxPants are for those who require assistance moving
around, while the CERTAINTY Tape is specially designed for bedridden
patients. 

 

Through understanding their customers and the general needs of
Malaysians, CERTAINTY strives to provide viable solutions to incontinence and
eliminate the social stigma of using adult diapers. Families and caretakers are
now able to take care of incontinence needs, while feeling secure and confident
about living a healthy life again.

 

With its tagline “For Everyday
Confidence“, CERTAINTY believes its range of adult diapers created based on
the ADL care concept will allow both caretakers and people with incontinence
issues to live independently and confidently. For more information on the ADL
care concept, please visit www.certainty.com.my or the CERTAINTY Facebook page at www.facebook.com/certaintymalaysia.

 

The reviews and opinions expressed here
are those of the authors and do not necessarily reflect the official policy or
position of Disposable Soft Goods Sdn Bhd.